| Location | Gorleston |
| Age | 29 years |
| Date of Birth | 10/1977 |
| Date of Death | 6/2007 |
| Visitors | 4,407 since 25/06/2007 |
| Creator | |
| Helpers |
'THE DADDY'
Simon Jon Cullum
Simon was my oldest son, born on 6th October 1977. He was fit and healthy, a normal 29 year old who
didn't drink or smoke.
On Friday 8th June 2007 I came home from doing some shopping to find Simon sitting at the computer.
On my arrival he came into the kitchen and we had a conversation about what we would be having for
dinner that evening, and then he went up to his bedroom to go on the Playstation. It was around
11.45am.
At 12.45pm I noticed that his car keys were still in the kitchen and he had an appointment in town
at that time. I called him and got no reply. When I went up to his room I found him collapsed on
the floor! Luckily I had a friend with me (Simon's Godfather) so I called to him and he came
up and started CPR while I dialled 999.
The ambulance was there within 2 minutes and they worked on Simon for 30 minutes - but there was
nothing they could do. I actually knew he was gone when I found him.
I was told by the Coroner on the Monday that there was no obvious cause of death and that it was
probably Sudden Adult Death Syndrome - and there would be an Inquest. We really couldn't get
our heads round the fact that nobody could tell us why Simon died. Like many others I gave
permission for his heart to go to Brompton Hospital for tests which came back saying they too found
nothing.
Robert really struggled with the " Natural Causes " statement, as we all did.
While this was going on I was advised that myself (Marilyn), my husband John and our youngest son
Robert should all have an ECG. Robert had his first and that was fine. A couple of days later John
and I went for ours. John's was fine but it showed on mine that I have Long QT Syndrome.
Simon's Inquest is still ongoing so I informed the Coroner of my condition which he said he
would pass on to the doctor doing Simon's Inquest. I still don't have a proper Death
Certificate, as his death cannot be registered until all tests are finished. It is horrible not
having any answers as to why a fit and healthy 29 year old dies - but I now tell myself that Simon
probably had Long QT the same as me.
Robert and myself are now waiting for an appointment to have an Echocardiogram.
Its not until something like this happens to you that you discover just how many young people are
dying, and I am so glad that a charity like CRY exists. I have found the information I have received
from them very helpful and would like to say a big 'Thank You' to everyone involved at
CRY.
Life will never be the same for us again without Simon in our lives - and his death has also greatly
affected all his friends too.
I'm so glad that I am able to share my story with others who are suffering in the same way and
my heart goes out to you all.
Marilyn Cullum
Bonfire Nite x
Hi Bro
Went to Matt and Fayes for firework nite has a really goodtime but was bloody freezing! And I think Alfie is teething at the moment too! I helped Matt light the fireworks was quite a laugh. Think of u everyday and the things we used to do!!! Alfie looks like u on some of his pic's, lets hope he doesn't have ur ginger hair!!!!! We have booked our wedding to Vegas, we are both very excited. Wish u could of been there with us but I know u will be watching from up there.
Alfie sends a kiss, watch over him for us.
Love Rob xox
Holiday
Hi Simon, Dad and I are off on holidy to St Lucia tomorrow so i wont get up to see you for a week, but Judy is going to sort your flowers for me.
Your birthday flowers still look good, you had loads, which was lovely to see.
I will be away for my birthday too, but we get back on mon 26th so i will come straight up to see you
Love and Miss you Lots Mum xxxxx
Happy Birthday si!! Have a good one!! i have been working all day so havent had a chance to come see you! carl and i are going tomorrow, we will do our usual talking about the old days and laughing about the silly thing we used to get up to!
Love and miss you
Rosie xxx
Birthday Hugs x
Hey bro another year it all goes too fast. Miss and love you everyday! Like I always say not aday goes by when I dont think of you. Till we meet again love always Rob, Cas and Alf x x x
Happy Birthday
Morning Simon, Happy 32nd Birthday sunshine !!!
Will come and see you in a little while with your flowers, wish i was giving you cards and presents in person, it still doesnt seem real!
Hope you are having a drink up there with Grandad Arthur as you share your birthday with him
Love and Miss you Lots
Mum xxxxx
Alfie
Morning Simon, i bought Alfie to see you again yesterday and he was awake this time so i got him out of the pram and we sat on the grass and had a little chat , i told him all about Uncle Simon and his cars lol
He likes your windchimes !
He is growing so fast, he is 10wks old now and a very happy and content little boy, you would love him.
Its Cassies birthday today and next Sat they are going to London and we are looking after Alfie for the night so i will bring him to see you again.
Your birthday is fast approaching again Simon, i cant believe you would be 32 !!
Dad had his first dream about you the other night ! Its hard when that happens!
Love and Miss you Lots
Mum xxxxx
As always missing you here
Hi Bro,
We are getting used to being a little family now Si after a busy 8 weeks. Cas is in hospital again this thursday for an operation on her knee so fingers crossed that she is not in too much pain. Sold the two cars I had and now have 2 new ones, cas drives 330d and I have an integra type R. Alfie is lush and in some photos looks like you lol. Wish u were here to meet him but I know your looking out for him. Mum and Dad love having him, you should here the way mum talks to him its sooo funny you would be laughing!!!
Miss u always bro
Rob x x x
hello x
hello simon,
just wanted to say hello, well as u no i have a lil girl called teagan shes well big now nearly 2 and i also have another lil one due 30th aug im massive and they say baby gonna be small yh right teagan was 8lb 9oz lol. well im missing you taking the piss as always lol.
miss ya loads
ann-marie xx
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