| Location | Gorleston |
| Age | 29 years |
| Date of Birth | 10/1977 |
| Date of Death | 6/2007 |
| Visitors | 5,724 since 25/06/2007 |
| Creator | |
| Helpers |
'THE DADDY'
Simon Jon Cullum
Simon was my oldest son, born on 6th October 1977. He was fit and healthy, a normal 29 year old who didn't drink or smoke.
On Friday 8th June 2007 I came home from doing some shopping to find Simon sitting at the computer. On my arrival he came into the kitchen and we had a conversation about what we would be having for dinner that evening, and then he went up to his bedroom to go on the Playstation. It was around 11.45am.
At 12.45pm I noticed that his car keys were still in the kitchen and he had an appointment in town at that time. I called him and got no reply. When I went up to his room I found him collapsed on the floor! Luckily I had a friend with me (Simon's Godfather) so I called to him and he came up and started CPR while I dialled 999.
The ambulance was there within 2 minutes and they worked on Simon for 30 minutes - but there was nothing they could do. I actually knew he was gone when I found him.
I was told by the Coroner on the Monday that there was no obvious cause of death and that it was probably Sudden Adult Death Syndrome - and there would be an Inquest. We really couldn't get our heads round the fact that nobody could tell us why Simon died. Like many others I gave permission for his heart to go to Brompton Hospital for tests which came back saying they too found nothing.
Robert really struggled with the " Natural Causes " statement, as we all did.
While this was going on I was advised that myself (Marilyn), my husband John and our youngest son Robert should all have an ECG. Robert had his first and that was fine. A couple of days later John and I went for ours. John's was fine but it showed on mine that I have Long QT Syndrome.
Simon's Inquest is still ongoing so I informed the Coroner of my condition which he said he would pass on to the doctor doing Simon's Inquest. I still don't have a proper Death Certificate, as his death cannot be registered until all tests are finished. It is horrible not having any answers as to why a fit and healthy 29 year old dies - but I now tell myself that Simon probably had Long QT the same as me.
Robert and myself are now waiting for an appointment to have an Echocardiogram.
Its not until something like this happens to you that you discover just how many young people are dying, and I am so glad that a charity like CRY exists. I have found the information I have received from them very helpful and would like to say a big 'Thank You' to everyone involved at CRY.
Life will never be the same for us again without Simon in our lives - and his death has also greatly affected all his friends too.
I'm so glad that I am able to share my story with others who are suffering in the same way and my heart goes out to you all.
Marilyn Cullum
Christmas
Hello Simon its a while since ive been here but talk about you everyday, cant believe its nearly xmas again ! Ive just sorted your tree out that Kirsty and Matty got you last year will take it to your resting place this week when ive replaced the batterires.Alfie is growing fast poor little chap has a problem with one of his eyes but takes it all in his stride bless him, Me and Dad are going away for xmas again this year as we have every year since youve been gone, Rob and Cass are away next week and we will see them xmas night and boxing day before they fly home. Had a fundraiser for CRY last week and raised another £620 towards getting a screening unit in Gorleston so that was great.
Love and Miss you so much Mum and Dad xxxxx
Birthday
Thinking of you today as always Simon on what would have been you 34th Birthday, love and miss you lots and lots
Love Mum and Dad xxxxx
4yrs !!
Well Simon, 4yrs today been dreading this day, and it started tearfully for us but at 7.30am Alfie arrived with flowers for you and for me too bless him.
After breakfast i walked him over to see you and bring the flowers from Rob and Cass, as Rob is working in Hartlepool and Cass has been to Uni, he loves coming to see you he runs riot lol
He always gives your headstone a kiss when we leave :-)
Cass came home from Uni at 5 so her and Alfie stayed for tea and then Alfie had his bath here so they didnt leave til 7pm so that kept me occupied all day which was a great help
Love and miss you as much today as i did 4yrs ago
Thinking of you always
Mum and Dad xxxxx
Hello Again
Hi Simon cant believe how close your 4th Anniversary is now, they come round so quick !!!!!
Been to see you twice today with Alfie, he's always asking to go to Simons house lol He likes to water the flowers and kiss your headstone, this morning he picked up your car that Carl left you and bought it home and this afternoon we had to go back as he wanted to give it back to you bless him.
We speak about you everyday Simon, still cant believe you are not here and miss you every day
sending lots of love, Mum xxxxx
Old times
just dropped by mate to say hi, it's pretty much like old times here lately, matty came round and cut my grass and when I went to b and q Chris was smoking some rs focus up the bypass in his old ZAPU cossie! That boy cracks me up - all that money and driving round in an old Sierra lol - like I say just like old times !
Alfie
hi Simon been to see you again today with Alfie, bless him he brings you presents , two frogs and a bumble bee and he always wants to help me water your flowers and doesnt leave without kissing your headstone and saying bye bye love you !! Dad and I had him on sunday for a few hours and when we got in the car he kept saying Simon see Simon lol He's a lovely little boy and its so sad that he never go to meet you, you would have loved him to pieces and him you ( although he does anyway ) Not a day goes bye without your name being mentioned i cannot believe it will be 4yrs in June that we lost you, in some ways it seems like yesterday and in others it seems like forever since ive seen you and heard your voice, it doesnt get any easier Simon
Love and Miss you always
Love Mum and Dad xxxxx
Christmas 2010
Hi Simon sorry this is a bit late but ive had trouble getting on the site !!!!!
Dad and me have been away for xmas again as we have done since youve been gone, it seems to be easier for us not being home at xmas, Rob and Cass took Alfie to see you and i hope you like the frog he has left you bless him, he kisses your headstone and waves when he leaves and if we show him a pic of your stone he says Simon !!
Kirsty and Matty got you a xmas tree with lights on, its lovely hope you like it and Hatchey left you some flowers too, you have some great friends.
Well new years eve today and we are about to start another year without you, we all miss you so much, but you spoken about every day and will never be forgotten
Love You Lots Mum and Dad xxxxx
Birthday
Hi Simon sorry i wasnt here for your birthday we were in Las Vegas for Rob and Cass's wedding !!
We did raise a glass to you and your friends did you proud once again with flowers.
The wedding was lovely but also tinged with sadness as you couldnt be with us, but you were very much in our thoughts
Love and Miss you lots
love mum and dad xxxxx
Fundraising
Hi Simon, well the walk went really well, it was a great day, so many people walking in memory of someone they had lost ! I got just over £300 in sponsorship which was great and i have to say your friends were great once again, bless them.
I also did a bucket collection at the racecourse which raised £293 and today i have had a stall at the clifftop gala which took another £64 , so that will all now be sent off to CRY in your Memory.
Love and Miss You Lots, Mum xxxxx
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